A catalyst for transforming health systems and person-centred care: Canadian national position statement on patient-reported outcomes

  • S. Ahmed McGill University
  • L. Barbera University of Calgary
  • S. J. Bartlett McGill University, McGill University Health Systems
  • G. D. Bebb University of Calgary
  • M. Brundage Queen’s Cancer Research Institute
  • S. Bryan University of British Columbia
  • W. Y. Cheung University of Calgary
  • N. Coburn Sunnybrook Health Sciences Centre
  • T. Crump University of Calgary
  • L. Cuthbertson British Columbia Ministry of Health
  • D. Howell Lawrence S. Bloomberg Faculty of Nursing, University of Toronto
  • A. F. Klassen McMaster University
  • S. Leduc CancerInsight
  • M. Li Princess Margaret Cancer Centre, University of Toronto
  • N. E. Mayo McGill University
  • G. McKinnon University of Calgary
  • R. Olsen University of British Columbia
  • J. Pink University of Calgary
  • J. W. Robinson University of Calgary, Tom Baker Cancer Centre
  • M. J. Santana Cumming School of Medicine, University of Calgary, Calgary
  • R. Sawatzky Trinity Western University
  • R. S. Moxam The Canadian Partnership Against Cancer
  • S. Sinclair University of Calgary
  • F. Servidio-Italiano CCRAN: Colorectal Cancer Resource & Action Network
  • W. Temple University of Calgary
Keywords: patient reported outcomes, patient reported outcome measures, PROs, PROMs, CANADA, patient experience, implementation science, health policy

Abstract

Background Patient-reported outcomes (pros) are essential to capture the patient’s perspective and to influence care. Although pros and pro measures are known to have many important benefits, they are not consistently being used and there is there no Canadian pros oversight. The Position Statement presented here is the first step toward supporting the implementation of pros in the Canadian health care setting.

Methods The Canadian pros National Steering Committee drafted position statements, which were submitted for stakeholder feedback before, during, and after the first National Canadian Patient Reported Outcomes (canpros) scientific conference, 14–15 November 2019 in Calgary, Alberta. In addition to the stakeholder feedback cycle, a patient advocate group submitted a section to capture the patient voice.

Results The canpros Position Statement is an outcome of the 2019 canpros scientific conference, with an oncology focus. The Position Statement is categorized into 6 sections covering 4 theme areas: Patient and Families, Health Policy, Clinical Implementation, and Research. The patient voice perfectly mirrors the recommendations that the experts reached by consensus and provides an overriding impetus for the use of pros in health care.

Conclusions Although our vision of pros transforming the health care system to be more patient-centred is still aspirational, the Position Statement presented here takes a first step toward providing recommendations in key areas to align Canadian efforts. The Position Statement is directed toward a health policy audience; future iterations will target other audiences, including researchers, clinicians, and patients. Our intent is that future versions will broaden the focus to include chronic diseases beyond cancer.

Author Biographies

S. Ahmed, McGill University

Department of Medicine School of Physical and Occupational Therapy

L. Barbera, University of Calgary

Department of Oncology

S. J. Bartlett, McGill University, McGill University Health Systems

Faculty of Medicine

G. D. Bebb, University of Calgary

Department of Oncology

S. Bryan, University of British Columbia

School of Population and Public Health

W. Y. Cheung, University of Calgary

Department of Oncology

L. Cuthbertson, British Columbia Ministry of Health

Office of Patient-Centred Measurement

M. Li, Princess Margaret Cancer Centre, University of Toronto

Department of Supportive Care

N. E. Mayo, McGill University

Department of Medicine School of Physical and Occupational Therapy

G. McKinnon, University of Calgary

Departments of Surgery and Oncology

R. Olsen, University of British Columbia

Radiation Oncology & Developmental Radiotherapeutics

J. Pink, University of Calgary

Department of Oncology, Cumming School of Medicine

M. J. Santana, Cumming School of Medicine, University of Calgary, Calgary

Department of Oncology

R. Sawatzky, Trinity Western University

School of Nursing

S. Sinclair, University of Calgary

Faculty of Nursing

Published
2020-02-14
How to Cite
Ahmed, S., Barbera, L., Bartlett, S. J., Bebb, G. D., Brundage, M., Bryan, S., Cheung, W. Y., Coburn, N., Crump, T., Cuthbertson, L., Howell, D., Klassen, A. F., Leduc, S., Li, M., Mayo, N. E., McKinnon, G., Olsen, R., Pink, J., Robinson, J. W., Santana, M. J., Sawatzky, R., Moxam, R. S., Sinclair, S., Servidio-Italiano, F., & Temple, W. (2020). A catalyst for transforming health systems and person-centred care: Canadian national position statement on patient-reported outcomes. Current Oncology, 27(2). https://doi.org/10.3747/co.27.6399
Section
Practice Guideline