AN INTEGRATED SUPPORT AND INFORMATION CENTRE IN A LARGE UK CANCER CENTRE ESTABLISHED IN 1993 & REPLICATED IN MORE THAN 60 UNITS ACROSS THE UK AND AUSTRALIA.

Jane Maher

Abstract


The Lynda Jackson Macmillan Centre (LJMC) established in 1993 has been a catalyst for change in the UK. Established in 1993 after a 2 year consultation between professionals and cancer patients it began with a small core staff in a purpose built building next to a cancer centre, networking with outreach workers in 12 surrounding hospitals, with a mission to improve information, communication and support for cancer patients.  Since 1996 the LJMC model has been adopted and developed by the charity Macmillan Cancer Support and has been spread to over 60 units across the UK and Australia.

  Introducing complementary therapies (CAMS) to a cancer centre was a particular early challenge.  Establishing a shared understanding as to the  role of complementary therapies, developing nationally accredited written information about them, credible recruitment and  governance procedures for  therapy practitioners, agreed outcome measures and peer reviewed evaluation and research have all been important in engaging cancer physicians and  managers but charitable funding is still required to support free access  to  most  complementary therapies.

An integrated supportive care service for cancer patients begins with a shift in the culture of cancer treatment organisations, moving from a professional to a patient centred agenda. Real reach and impact requires  “new” ideas,  and services to be integrated into the routine practice of the cancer care delivery organisations and a key lesson learned over the last 15 years is that an integrated support centre must continually adapt to be viable. Sustaining meaningful user guidance is a particular challenge.  Support for self management and testing and developing CAM services  are  growing parts of the portfolio.


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DOI: http://dx.doi.org/10.3747/co.v15i0.275






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ISSN: 1198-0052 (Print) ISSN: 1718-7729 (Online)